I was right
I really don’t care to know my sister’s business, but my mom insists on sharing. I haven’t personally spoken to my sister in about 18 months. This sounds really terrible, but I just have no interest in knowing her. If she was a complete stranger I wouldn’t think twice about abandoning her.
But her kids. . . yeah. . . they hurt my heart.
Anyway, my sister’s body is starting to shut down. Years and years ago when I first met my LJ friend, Jenn, I learned about celiac disease by reading her daily struggles. I looked up some more information, asked my sister some pointed questions, and diagnosed her with celiac disease. As far as my non-doctor self could tell she has a text book case of it. I told her over and over that she needed to request the test, but she always said the doctor couldn’t give her the test–it was too hard, it wouldn’t work for her, blah blah blah. From what I gather of the test it is just a simple blood test initially (followed by an internal biopsy if the blood results indicate celiac), so I’m calling BS.
Five years later and guess what she was just diagnosed with? Celiac. And since she’s let it go for so long it has caused so much damage to her system that she can barely eat anything without having intense illness. She’s severely allergic to dairy and who knows what else. I remember when I first met Jenn she was also allergic to tons of things because of the damage to her system from celiac. Jenn, did you ever heal yourself enough to eat some of your previous allergens?
Eating an allergen free diet is extremely difficult, even for the most responsible person. My sister has been a type I diabetic since she was 21 and she rarely keeps her sugars under control. She eats a ton of candy and chocolate, as well as drinking plenty of alcohol. This has wreaked havoc on her body and things are starting to shut down.
She is also suffering from pretty severe neuropathy, which is not a good sign.
She’s been killing herself slowly for years. I just wonder what all this means. How long can a person live with diabetes and celiac disease if they are unwilling to follow the necessary diet? You’d think she’d be damned sure she kept the wheat and dairy out of her diet since she suffers so much. I know it would be hard, but it seems like it would be worth it to avoid intense intestinal distress. You’d think a mother would want to be as healthy as possible so she can watch her children grow up.
I told my mom to make sure my sister knows to tell her kids’ pediatrician about the diagnoses and get them tested. Perhaps that would explain their stomach problems as well. My understanding is that it runs in families. In fact, I may ask for the blood test when I go in for my physical. I have zero symptoms, but my understanding is that it can be asymptomatic.
So. . . . I have no idea what is going to happen or what I think about what is going to happen. It is going to be a horrible, horrible thing when the inevitable happens. My mom is going to have a nervous breakdown. The kids. . . oh lord. I don’t even know. Will their dad decide to keep them? If he as a decent person there wouldn’t even be a question, but I have no idea what he will do.
And who knows. This might drag on for years.
We’re lucky we live in a country with mostly free-will (let’s not get into abortion debates), but at this point my sister needs to be locked up in a mental hospital and fed a regulated diet to bring her up to health. Won’t happen, but it is the only way she will live. I hope I am wrong about that.